AnonymousInactiveSeptember 9, 2001 at 1:46 amPost count: 1
Hi, another Debs..
My son is nearly 10 and diagnosed a’typical’ autistic at the age of 4.. but i disagree and if the rediagnosed him today he would be classic autism.
Constantly had issues with respite, blue badge and high rate mobility(won that one) went to tribunal twice! yay.
Have a non autistic daughter aged 5, life is generally hard work he only sleeps a max of 4hrs a night since the age of 2, done all the specialised sleep clinics and no avail.
He had vallegan forte. 10mls and melatonin 4mg a night and i think he now needs horse pills lol.
Just had to have a circumstion done (emergency0 and that was hard but he coped like a trooper, refused any pain relief.
And one thing i must say i am very proud of my boy!!
Thanks for reading and hiya to everyone. x
AnonymousInactiveFebruary 6, 2007 at 4:27 pmPost count: 7
Fight the school everyday, getting by and coping is not enough for our children, it takes every piece of their strength to understand the social skills and school rules and what is approprate behavour. That when our children get home we have to deal with the fallout, whether that is mood swings, being catonic, anger and frustrations. Get in touch with SN IP (special needs involving parents) to help with meetings with teachers and sencos, the school or family services should tell you who to contact for this service, these people work for YOU, not the school, they are there for your voice , your child. You can also ask for statutory assessment, and involvement of IPS., Good luck not take no for answer!!
AnonymousInactiveFebruary 6, 2007 at 7:38 pmPost count: 9
Thanks for your reply, I have just read your other message about your son starting secondary school I can truly empathise. I too believe my husband has AS he agrees too but we have not gone for diagnosis. We have just had two weeks of melt down, but was so happy my son went to school yesterday, he’s off again today….was sick in the car. Out of the blue a Health Visitor phoned this afternoon and for the first time in a long time I think I might be getting some help she is going to contact the school to start the ball rolling re statementing so that he can perhaps get the additional support he needs. Good luck with your journey and if you would like to share I am more than happy to listen etc., Thanks again Clare
- You must be logged in to reply to this topic.