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AnonymousInactiveSeptember 9, 2001 at 1:46 amPost count: 22
Note: SFTAH transferred this from old data base when site was updated, thus date and name lost, all dates 2006 & 2007 changed during changeover to odd dates.I'm Jayne,40 still (just) and as you can see from the time this was posted a bit on an insomniac.I've worked with children and young adults with ASD for a number of years initially working in a mainstream school supporting 3 boys with autism - I can't tell you how frustrating that was - but if you've got children of your own in mainstream then you'll probably have a good idea.Then I worked in a respite unit for children with ASD and now I am the Senior Worker with the Autism Family Support Team in Northamptonshire.Our Team works with families who have a child on the spectrum in their own home and out in the community. We use the principles of TEACCH - visual informaton, physical structure etc - to help adapt and modify behaviours - one parent described us recently as 'Super Nanny' for autism although I'm not too sure about that!Anyway that's me.
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AnonymousInactiveAugust 31, 2006 at 3:15 pmPost count: 20
Aww Hun dont be down i think it is something we all go through ,have you tried some social stories with him about friendships or something like that or tried explaining to friends moms about it ,how about when your out and about having a little photo copied card to state you son has Autism blah blah i know NAS do some or you can use the stuff them approach hold your head high and forget them as there really not worth batting an eyelid about ,dont hate society pity them because they dont know what there missing !!as for baby try social stories again or visual clues as to when he can hold the baby and to when he is to leave the baby alone sorry im not much help but you seemed so down ,chin up there are some nice people in the world xx
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AnonymousInactiveSeptember 2, 2006 at 11:02 amPost count: 6
Hi sammy think every body that has a special need’s child is in the same boat it bother’s me when i’m out and people stare at my little boy. Hold your head up high and be proud don’t let them get to you look on ebay put autism and there’s a site that sells t shirt’s and wrist band’s be proud.I got one for a walk i did for autism said proud mother of a child with autism they do front and back printing price’s are ok to good luck!!!!![:o)]
l blick
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AnonymousInactiveSeptember 6, 2006 at 1:26 pmPost count: 32
hi Jayne i think i know you from a group i go to once a month on Thursdays.
Not sure if you can help, do you do like home visits, to help with stratergies, or even to get professionals to give a diagnose, really need someones help
Thanks illy
(Elain)
There is always tomorrow!
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AnonymousInactiveSeptember 6, 2006 at 6:47 pmPost count: 20
Hi Jayne
Ah heck why is everything in Northamptonshire [:(]
[;)] -
AnonymousInactiveSeptember 8, 2006 at 9:05 amPost count: 3
thankyou debs and loubel, you did make me feel better and not alone,i’ve been tryin to toughen up to the way people react to him before his diagnoses at age three and am still sensitive and get real down now! thanks again.[:I]
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AnonymousInactiveOctober 20, 2006 at 3:02 pmPost count: 13
Im too live in Northants and am looking for something like that for my12 year old son, who also cannot deal with his temper,
I now just try to give him some space and let him calm down a bit,i know this is very hard, my son has tried to hurt himself and destroy my home so many many times. I have just brought a punch bag for him to put in his bedroom….Hope this will help
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AnonymousInactiveOctober 20, 2006 at 4:16 pmPost count: 13
My son is 12 and has aspergers, he is hanging in school by the skin of his teeth…. they do not understand him or do much to help.
He is constantly being excluded and is getting no education because of this. Im desperate to know what to do.
I live in northants myself can you offer me any support.
Thanks Jo
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AnonymousInactiveOctober 23, 2006 at 3:14 pmPost count: 22
Hi
not sure if we can help but I am more than happy to have a chat.
you can contact me on 07909 631363 – on leave until 30/11
or e-mail jayne.almond1@ntlworld.com – any timeJayne
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AnonymousInactiveNovember 9, 2006 at 2:11 pmPost count: 13
Hi ya, my son is now 12 and only recently diagnosed, his temper has esculated over the last 2 years, to the point where he has tried to stab himself and me. It has got really bad in school too, and now is getting excluded because of this.
When he gets angry i try to stay calm with him, not shout, as that only makes him worse, i have found that i say to him to try and go upstairs to his room so he can calm down,this is sometimes impossible as he will just get more angry. What i try to do is change the conversation and try to ignore the anger. Its so difficult i know. I tend to just give him to space to calm down, reasuring him every 10mins or so that im there if he wants to talk.
if ya wanna chat let me know and i can ring you, i wish i had people to talk to who understand…. thats what we need most..
Jo….
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AnonymousInactiveFebruary 6, 2007 at 7:45 pmPost count: 9
I have posted you a reply under my message. Please let me how you get on. Clare.
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AnonymousInactiveFebruary 7, 2007 at 1:00 pmPost count: 12
i am a 17 year old girl who has the same prob with my mum and dad lashing out at them and having problems controling it once it starts try to kill myself with knives i threatened to be locked up in a mental institute it gets to a point whre you take your frustartion and anger out on the ones you love and are close too i wish i wasn’t like tis to them but i cant help it my mum calms me down in the end by i try walking out the house but for my own safety they refuse to they have to physicaly restrain me whichs help a bit not alom makes me more angry but there we go im putting a strain on my family and don’t know what to do for the best?im on prozac and risperdal tabs for now
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AnonymousInactiveFebruary 7, 2007 at 1:23 pmPost count: 7
My son has AS and I would have said it was mild, but, he is worse than ever he is 11 nearly 12, and his anger outbursts are more frequent and getting worse especially school!!. We can control this anger and frustrations at home quite well at the moment, he is very small and under weight for his age, the smallest of his peers at school. I have found that to allowing him to calm down and reflect helps in a quiet and safe place ( sometimes his bedroom or under atable) or divert with something else an obession of the moment but never ignor!, trying to reason or argue back (not good but we are only human!!) only adds fuel to the fire. But at school it is another matter I worry that he will blow at the wrong person as he has no fear of anyone when he goes, and he may be hurt or hurt someone.
Most anger comes from frustration and stress, we all know this we can only try to manage this for them to a point, but trying to make them understand their feels and frustration is hard , and as we know in the seconds that they lose control, everything that we have tried to programme in them and props that we have given them dont work.
My main problem at the moment is School, and without a statement its very hard and a total minefield and I am starting to understand my sons frustrations, because at the moment I feel impotent and unable to express my views and feeling to these so called teachers and professionals who bamboozel you with jargon which is all crap!!.
This must how our children feel like they are invisable and trying to make people understand. I think when we can understand this and society we may be able to crack into their world. It is not our childrens fault its the society we are bringing them up into. They just dont have the skills yet to control their emotions or understand them.Dragontamer
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AnonymousGuestApril 22, 2008 at 6:35 pmPost count: 393
Hello Shell,
Thanks for the links[:)]sounds like you have your hands well and truely full!
Love from,
ImogenX
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AnonymousInactiveApril 22, 2008 at 7:44 pmPost count: 17
Welcome to you Imogen, the NAS paris facility http://www.info.autism.org.uk/Mobile/Pages/Index.aspx will help you with schools and services in each region of the UK.
The other site you will find extremely useful is AWARES http://www.awares.org/ (AWARES – the All Wales Autism Resource)
Visit us today ……Advertisement in Advertisements section
The Blue Room Forum … A place for anyone involved with or affected by Autism or Asperger’s Syndrome.
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AnonymousGuestMay 1, 2008 at 10:51 amPost count: 393
Hello Carey,
Thankyou for your info [:D] have joined the blue room, and see it is on the move!!! Was it me? havent said anything yet[:o)]
Love,
ImogenX
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AnonymousInactiveJuly 29, 2008 at 5:29 pmPost count: 17
Hi HS16,
It sounds as if oyu have a good understanding of your nephews needs, it is good to hear of a positive success in a mainstream setting too. I hope he excells.
The Toy library you mention is just a few miles up the road from me, I have heard some good reports about them, are you in the Dorset area?
Visit us today ……in the adds section
The Blue Room Forum … A place for anyone involved with or affected by Autism or Asperger’s Syndrome.
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AnonymousGuestAugust 3, 2008 at 3:26 pmPost count: 393
Hi Carey2,
Thank for your Email!
Just in relpy to it. Yes I do live in the Dorset area!HS16[:o)]
p.s. I will look into the web address which you knidly posted to me.
Thanks once again its good to talk to someone who passes on valuable info.16.04.1976
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AnonymousInactiveAugust 27, 2009 at 9:50 pmPost count: 96
HiI am amum to 6 four have autism.I also have autism.http://autismandaspergersinthefamily.freeforums.org/index.php
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AnonymousInactiveNovember 19, 2009 at 6:17 amPost count: 1
You're are a great adviser because you share your experience to us._________________clothing label
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AnonymousInactiveNovember 19, 2009 at 6:32 amPost count: 96
http://autismandaspergersinthefamily.freeforums.org/behaviours-f11.htmlhope ths helps with behaviours 🙂
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