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Hi Ian
I live in Bristol, and my son is 4 1/2. Like you, we can’t take our son to places we used to take for granted – we discovered that the noise, visual stimulation, people etc. disturbed him a lot, or he would behave in ways that showed us he was trying to shut it all out. He talked late, copied lines from tv or books, and now talks when he wants to, and we have learnt not to bombard him with q’s as he needs time to answer (if he does at all). There is always sign language I guess, wish I’d tried it as he gets frustrated, (and us too).
I daren’t think of the future,and I know I have so many fears about his life. He doesn’t have any little friends, but doesn’t know any different yet. I live on an emotional rollercoaster just being in the present. Someone gave me some good advice recently -take care of the present and what you do now will take care of the future!
I often feel very alone with it all, so its nice to say hello to you and know there are a lot of us out there. And yes, love and affection is all!! Our little chap is on the Handle programme which certainly helps, and I highly recommend it. Also we have just banned tv and pc’s, as it was getting to a fever pitch of an obsession. Hard to do, but life is a bit calmer this week and he seems happier to do other things.
It’s good to talk –
Warmest wishes